Editing Openai/696a86ed-b29c-800b-9b01-dda9d1d4ddf0 (section)

==== How to actually find a doctor/center that might offer it (without guessing) ====

Here’s the fastest path I’ve seen work in situations like this:
# Ask his current urologist for an urgent referral to a tertiary center for “refractory hemorrhagic radiation cystitis / intractable hematuria.”
# When calling the tertiary center, ask for a urologist who specializes in: - Intractable hematuria - Radiation cystitis - Endourology or urologic oncology (often overlaps)
# Use very specific language: “Do any of your urologists have experience with cystoscopic RADA16 (PuraStat) hydrogel application for radiation cystitis bleeding?”

Good bets to start (because they’re set up for unusual/off-label therapies and have the supporting services if things go sideways):
Mayo Clinic, Cleveland Clinic, MD Anderson, Memorial Sloan Kettering, Johns Hopkins, UCSF, University of Michigan, Northwestern, Duke, Vanderbilt.

Also: contact 3-D Matrix (maker of PuraStat) and ask their medical/scientific affairs team which U.S. centers have experience with PuraStat in urology or have requested it for non-GI bleeding—companies often can’t “recommend a doctor,” but they can sometimes tell you where there’s usage/interest. 3dmatrix.com<ref>{{cite web|title=3dmatrix.com|url=https://3dmatrix.com/products/purastat|publisher=3dmatrix.com|access-date=2026-01-17}}</ref>